Welcome to the Circle of Hearts Family Support Network

Finding out your child has congenital or acquired heart disease is extremely stressful. A new diagnosis brings many questions and feelings of uncertainty. You are not alone. The Circle of Hearts Family Support Network is a non-profit children's charity made up of parents and caregivers who have children with congenital or acquired heart defects. The Circle of Hearts represents all pediatric heart patients and families of the Variety Children's Heart Centre, who span over Manitoba, Nunavut, parts of NW Ontario and Eastern Saskatchewan.

We believe that it is of great benefit to communicate with families who have gone through similar situations. It can help prepare your family for some of the situations and feelings all of you experience. We aim to provide emotional and educational support to those who are in need, as well as a means of networking among families whose children are affected by heart disease.

Along with providing such support to our families, the Circle of Hearts also provides fun family activities throughout the year to show our heart children that there is more to the Variety Children's Heart Centre than being a cardiac patient.

What is a congenital heart defect?

A congenital heart defect (CHD) is an anomaly of the heart that is present at birth, involving one or more portions of the heart to develop abnormally. There are many different types of congenital heart defects, and they range from simple defects such as a tiny hole that will never require treatment, to complex defects with severe, life-threatening symptoms that affect how blood and nutrients are pumped throughout the body. Some babies may be diagnosed before or at birth; some not until days, weeks, months, or even years later. Undiagnosed CHDs and childhood onset heart disease cause many cases of sudden cardiac death in young athletes.

Congenital heart defects are the world's most common type of birth defect; about one in every 100 babies are affected, representing 1% of births (Health Canada, 2002). In Canada, there are almost 100,000 adults who, as children, had surgery to correct congenital heart defects (Marelli et al, 2006). Over the past few decades, diagnosis and treatment of heart defects has improved significantly. With modern treatment, more than 90% of children survive well into adulthood.

Upcoming Events

Breakfast With Santa 2015
Sunday, December 13, 2015 from 9:00 AM until 12:00 PM
Clarion Hotel

Good day COH Members!

The Circle of Hearts Family Support Network is pleased to invite you all to our upcoming Breakfast with Santa, being held on Sunday, December 13th, from 9:00 am until 12:00 noon, at the Clarion Hotel. Please see attached poster for more details.

There will be live musical entertainment, a children's craft station, a Christmas themed backdrop set up where families can have their photo taken by a professional photographer, and of course SANTA CLAUS!

We will again be collecting monetary donations as well as non-perishable food items towards our COH Christmas Hamper. This year we are trying something different, as we will be using the funds raised and food donations to put towards providing a holiday dinner and gifts for heart children and their families who are unfortunately staying in-hospital during Christmas. This will be provided through the Ronald McDonald Family Room at the Winnipeg Children's Hospital.

Please RSVP by email, phone or on our Facebook page by December 1st, including the number of adults and children attending, as well as the names, ages and gender of all children, and noting who is the “heart” child.

Thank you and we look forward to seeing you there!

The Circle of Hearts Board

Past Events

Summer Picnic
Saturday, August 29, 2015 at 1:30 - 3:30 PM
St. Vital Park Picnic Shelter

Please come and join us for food, friends and fun!

Bouncy slide, food, drinks, candy scramble...

Please RSVP by August 22nd with your family name and number of people attending to circleofhearts@hotmail.com or 204-231-0797, and please leave a detailed message.

-Sponsored by the Burns Family Foundation and the Winnipeg Foundation-

Circle of Hearts Family Camp 2015
July 17 - 19, 2015 at Variety's Camp Brereton

The Circle of Hearts Family Support Network is pleased to offer its 12th annual Family Heart Camp, open to all VCHC families!

When: Friday, July 17 to Sunday, July 19
Where: Variety Camp at Lake Brereton, in the Whiteshell Provincial Park
Cost: Free for Heart Child and siblings 5 years and under; $50 for other persons

RSVP: To request registration package, email circleofhearts@hotmail.com or contact Joni Wilson at 204-688-0418.

Registration forms must be returned NO LATER than June 30th!

Family Camp includes...

  • 7 newly-renovated shared group cabins (69 spaces total)
  • All meals & snacks provided
  • Camp is wheelchair-accessible & vision-impaired friendly
  • Common washrooms & showers
  • Large common dining hall & family room (Main Lodge)
  • Canoes, kayaks, paddleboats, & lifejackets available
  • Private beach area
  • Fishing area
  • All-ages crafts & activities offered
  • Basic First Aid accessible

Heart Heroes Youth Camp 2015
July 20 - 24, 2015 at Variety's Camp Brereton

The Circle of Hearts Family Support Network is pleased to offer a five day Youth Camp! Open to all 10-18 year-old Variety Heart Centre patients.

When: Monday, July 20 to Friday, July 24
Where: Variety Camp at Lake Brereton, in the Whiteshell Provincial Park
Cost: Free for Heart Hero; $50 for one friend or sibling accompanying them

RSVP: To request registration package, please email Cheryl Janz at cheryl@envisioncl.com or leave a message at 204-231-0797.

Registration forms must be returned NO LATER than June 30th! No refunds nor registrations after this date will be accepted.

Newly-renovated cabins! Nancy, our activities coordinator, will have plenty of new games and activities to keep you well-occupied, as well as old favorites of course! Swimming, canoeing, kayaking, sports court games...
Nurse, lifeguards and camp counselors provided as well as food and transportation.

Circle of Hearts Bud Spud and Steak Fundraiser
Saturday, February 7th, 2015

The Circle of Hearts Family Support Network hosted a Bud, Spud & Steak Fundraiser at Cowboys on Saturday, February 7, 2014 which raised funds for our yearly programming. We held it in conjunction with Congenital Heart Defects Awareness Week, showing our guests what exactly we are all about: supporting our heart kids and their families! You can check out some pictures in the Gallery.

We enjoyed a steak or chicken dinner and a speech from heart hero Brittany Fox; she had quite the inspiring story. The fundraiser was a great success thanks to the silent auction contributors and ticket sales, but especially because of all the hard work the Board of Directors put into the event. You are awesome!

Thank you all for your support!

Annette Massey