Welcome to the Circle of Hearts Family Support Network
Finding out your child has congenital or acquired heart disease is extremely stressful. A new diagnosis brings many questions and feelings of uncertainty. You are not alone. The Circle of Hearts Family Support Network is a non-profit children's charity made up of parents and caregivers who have children with congenital or acquired heart defects. The Circle of Hearts represents all pediatric heart patients and families of the Variety Children's Heart Centre, who span over Manitoba, Nunavut, parts of NW Ontario and Eastern Saskatchewan.
We believe that it is of great benefit to communicate with families who have gone through similar situations. It can help prepare your family for some of the situations and feelings all of you experience. We aim to provide emotional and educational support to those who are in need, as well as a means of networking among families whose children are affected by heart disease.
Along with providing such support to our families, the Circle of Hearts also provides fun family activities throughout the year to show our heart children that there is more to the Variety Children's Heart Centre than being a cardiac patient.
What is a congenital heart defect?
A congenital heart defect (CHD) is an anomaly of the heart that is present at birth, involving one or more portions of the heart to develop abnormally. There are many different types of congenital heart defects, and they range from simple defects such as a tiny hole that will never require treatment, to complex defects with severe, life-threatening symptoms that affect how blood and nutrients are pumped throughout the body. Some babies may be diagnosed before or at birth; some not until days, weeks, months, or even years later. Undiagnosed CHDs and childhood onset heart disease cause many cases of sudden cardiac death in young athletes.
Congenital heart defects are the world's most common type of birth defect; about one in every 100 babies are affected, representing 1% of births (Health Canada, 2002). In Canada, there are almost 100,000 adults who, as children, had surgery to correct congenital heart defects (Marelli et al, 2006). Over the past few decades, diagnosis and treatment of heart defects has improved significantly. With modern treatment, more than 90% of children survive well into adulthood.
Pasta & Pint February Fundraiser
Saturday, February 16th, 2019
Viscount Gort Hotel, 1670 Portage Ave. Winnipeg
Time: 5:00 PM - 8:00 PM (Supper served at 05:15 PM - 06:45 PM)
Cost: $15 for meal & pint tickets. Support tickets available for $10 if unable to attend.
Who: For all people who want to support the COH charity! Family friendly event for all ages.
Silent auction prizes will be available as well as some grand prizes and door prizes. Crafting stations and
a BYO Camera photobooth will be available.
We have several amazing items for the silent auction including: West Jet tickets, instapot, crock pot,
jewelry, golf memberships, gift cards, frozen meat package and many more!
Contact email@example.com to arrange ticket purchases or contact one of our board members!
Family Fun Drop-In Nights
When: Select Fridays of 2019 including: March 8th, April 12th, and more to come!
Where: Sargent Tommy Price Place 90 Sinclair Street (free parking)
Time: 6:30 PM - 9:00 PM (movies start at 7:00 for children)
Who: For all people who want to meet and find or offer support to our fellow COH families. Family
friendly event for all ages.
We serve coffee, tea, juice boxes, water bottles and fresh popped popcorn! No charge.
The space is large and generous to allow us to set up tables for parents to chat at, have crafting table for
the kids and set up an area for kids to watch a movie. Come in your pajamas, bring a blanket and
snuggle in. If that isn’t your speed, bring along your favorite board game!
Contact firstname.lastname@example.org to suggest movie ideas for upcoming dates or other activities that
might bring you or your family out.
Future Events ⏩
Brereton Family Heart Camp 2019
Variety’s Camp Brereton, Aug 2nd to 5th
The camp is open to all cardiac families seen by the Variety Children’s Heart Centre and
supported by the Circle of Hearts Charity. Stay tuned for more details.
Brereton Youth Heart Camp 2019
Variety’s Camp Brereton, Aug 5th to 10th
The camp is open to all cardiac youth ages 12–17 years old who are seen by the Variety
Children’s Heart Centre. This year the youth camp will overlap with family camp to ease the
transportation of youth. Stay tuned for more details.
Summer Picnic 2019
Location and Date to be determined
The picnic is open to all cardiac families seen by the Variety Children’s Heart Centre and
supported by the Circle of Hearts Charity. There will be food, activities, fun for all ages and best
of all the event is always free for all family members! Stay tuned for more details.
Breakfast With Santa 2019
Location and Date to be determined
The breakfast is open to all cardiac families seen by the Variety Children’s Heart Centre and
supported by the Circle of Hearts Charity. There will be food, activities, presents from the big
man himself & fun for all ages and best of all the event is always free for all family members!
Stay tuned for more details.
Tell Us: How Do You Want To Be Supported in 2019?
The COH Board strives to ensure that yearly activities are presented to bring families together.
This gives you all an opportunity to meet each other and develop support systems. The best
understanding can usually be found by those going through similar situations.
That being said, we are always looking for more ways to support the whole family. We want to
hold events that are not only family based, but also events just for the kids, just for moms, just
for dads – or those you suggest.
Please email email@example.com with your suggestions of activities we can either
organize or host to best suit you as our heart families.
Push-action Ballpoint Pen (blue ink) — $2.00 each or 12 for $20 (no taxes charged)
Red and black body, with the Circle of Hearts logo in white.
Large Drawstring Knapsack — $7.00 each (no taxes charged)
17”w. x 20”h. in red with the Circle of Hearts logo in white.
16-ounce Travel Mug — $15.00 each (no taxes charged)
Double-walled stainless steel with safety lid and slide-action opening. White band with a red/blue Circle of Hearts logo.
(Click the image for full-size previews.)
To place an order, please contact firstname.lastname@example.org. Stock is limited and will be sold on a first come/first served basis. Payment can be made by cash or cheque.
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